Sunday 31 July 2016

Saturday

Morgan had a quiet day today. She has had a sore throat all day. It is a bit concerning as her counts are at zero right now. She does not have a fever though, so that is a good thing. Hopefully it will pass soon.

Saturday 30 July 2016

Friday

Morgan went to her oncology check up at Children's today. She had her bloodwork done. Her white blood cells are at zero as expected. Her hemoglobin is okay, so no blood transfusion today.

She was feeling good all day and even managed to get out for a walk this evening.

Thursday 28 July 2016

Thursday

Morgan had a good day today. She was feeling well and in good spirits.

We met with the plastic surgeon today that will be working along side the thoracic surgeon.

The doctor informed us that after the thoracic surgeon removes Morgan's clavicle, possibly top rib and part of her sternum, he will be taking some muscle and tissue from either her leg or her back to put in place of where the clavicle was removed to help her with mobility.

The entire surgery should take around 8 hours and then Morgan will be in ICU for about a day. Once she is stable, they will move her to the ward where she will recover in the hospital for 1 to 2 weeks.

We are now waiting for an appointment with the anesthesiologist which we are told will be a 2 hour appointment.

It was a stressful day for Morgan and us as well just hearing how in depth the surgery will be. We will be happy to get over this hurdle as it will bring us one step closer to curing Morgan of her cancer.

Wednesday

Morgan had another good day today. She was able to spend some time outside and was in good spirits.

Tomorrow she will be meeting with the plastic surgeon that will be working along side the thoracic surgeon.

The surgery has officially been booked for next Thursday morning at VGH. She will be recovering at VGH for aproximatley 1 week and then we will consult with the oncologist and go from there. Full recovery from her operation is aproximatley 1 month. Morgan is extremely nervous for the procedure as are we. The unknown is always the hardest part.

Tuesday 26 July 2016

Tuesday

Morgan had a great day today. She was feeling better so she decided to join us on our walk to the park. She had just gotten the new pokemon go app on her phone and was eager to test it out. She had a great time ( attached to this blog post is a picture of Morgan on the hunt for pokemons).

Max was so excited to have Morgan out with him today that he decided to forgo the playground and follow her around on her hunt for pokemons instead. It was really sweet.

She had a bit of nausea today but overall it was a great day for her.

Monday

Morgan had another quiet day. She is still having some nausea but is in better spirits today.

Sunday 24 July 2016

Sunday

It was a quiet day for Morgan at home. She was feeling nauseous all day and was having some troubles with acid reflux. She managed to eat okay today and spent the day playing in her computer and watching tv.

Saturday- She's home!

Morgan had another okay day. She has felt unwell and nauseous throughout the day. She still managed to eat well. She was able to come home early this evening. She rested this evening and was off to bed early.

Saturday 23 July 2016

Day 2 (Friday)

Morgan had an okay day today. She battled nausea for most of the day and spirits were low. She managed to eat today and slept quite a bit. She should be coming back home tomorrow late afternoon.

Thursday 21 July 2016

Day 1 (Thursday)

Morgan went into Delta Hospital this morning to get her bloodwork done. We found out later in the morning that she was all set to start her 2 day chemo today. It is great news as we were really hoping to get one more round of chemo in before her surgery.

So far so good. She is feeling okay. She is little tired but she is eating well and in good spirits.

Wednesday 20 July 2016

Wednesday

Morgan had a good day today. She went to Delta Hospital first thing to get her bloodwork done. Then late this afternoon we found out that her counts are on their way back up. Her white blood cells look great, now we just need to wait for her platelets to go up so that she can hopefully go in for one more round of chemo before the surgery.

She managed to go out for dinner and to a movie tonight which was a nice break for her. She will go back in to Delta Hospital tomorrow morning to get another round of bloodwork done. If it looks good, we will be starting her 2 day chemo tomorrow.

Tuesday 19 July 2016

Tuesday -Back home!

Morgan had a good day today. She isn't feeling 100% yet but is doing much better. Her doctor thought she was well enough to go home today which is great!

She will be going to Delta Hospital in the morning to get her bloodwork done. She may need a platelet transfusion in the next few days as they have remained quite low. If her counts bounce back by either Thursday or Friday she will go in for her final round of chemo before the surgery. If her counts do not bounce back by then, we will just skip this last round and wait for the surgery.

Monday 18 July 2016

Monday

Morgan had an okay day. She is still fighting off this virus, but is in good spirits

Her white blood cells and platelets are still extremely low, so they are keeping a close eye on her. She is still receiving iv antibiotics as well.

The doctor informed us today that if her counts do not return to normal by Thursday they will be canceling her scheduled 2 day round of chemo this week. The doctors would like to see her counts return to normal in preparation for her surgery. They will not do another round of chemo until after her surgery which is set to tentatively take place on August 4th.

Sunday 17 July 2016

Sunday

Today Morgan is still suffering with a swollen sore throat. In addition to that, one of her eyes became irritated last night and was puffy and red for most of the day today.

Morgan received a blood transfusion this afternoon, is still on iv antibiotics, and her tempature has been normal today.

Fingers crossed she will feel better tomorrow and be able to return home.

Saturday 16 July 2016

Saturday

Morgan had a rough day today. When she got up this morning, she told me she had been up most of the night not feeling well and feeling extremely hot. We called the hospital and her doctor told us to bring her in.

She was admitted this morning and has undergone an x ray to check her lungs as well as she had some additional blood cultures done to see if they can nail down the virus she has. She was then put on an IV antibiotic and fluids. She is still feeling pretty horrible and has had a sore throat for most of the day. She has been on the cusp of a fever for most of the day as well.

Hopefully she will be able to get some rest tonight and will be feeling a bit better when she wakes up tomorrow morning. She will be in the hospital for a minimum of 48 hours for the antibiotics and we will go from there.

Friday 15 July 2016

Friday

Morgan had a long night last night. She had trouble sleeping and was feeling hot.

This morning we went for our usual bloodwork and appointment at Children's.

Morgan has no white blood cells right now as per usual. Therefore, she has no way to fight off this ongoing cold. The doctor was a little concerned today that she may spike a fever over the weekend because of the cold. They decided to give Morgan some IV fluids at the hospital to give her a little extra boost of hydration and then they let us go home.

We are to keep a close eye on her tempature over the course of the weekend. If she develops a fever we will need to go back in and be admitted so that they can start an antibiotic IV. So far so good! She is feeling tired and hot, but no fever.

Thursday

Morgan had a quiet day today. She is feeling very tired.

Tomorrow morning we head into Children's for bloodwork and to meet with the doctor.

Wednesday 13 July 2016

Wednesday

Morgan had a good day. She felt nauseous throughout the day but still managed to eat well. She seems to be slowly kicking this cold and hopefully she will be over it in the next few days.

Morgan had an exciting evening. A few weeks ago, we found out that Morgan had been approved to receive a wish from the Make A Wish Foundation!

She of course has been over the moon since then and has been thinking about what her wish would be. Tonight we met with a lady from Make A Wish to talk about what Morgan would like her wish to be. She has decided on a trip to DisneyWorld in Florida!

She let the lady know this evening that Disneyworld was what she would like her wish to be. The wish will be fulfilled once we are fully done all of her chemo treatments hopefully sometime between January- April 2017. Needless to say, Morgan is extremely excited and this has given her a huge, happy, and exciting light at the end of the tunnel.

Tuesday 12 July 2016

Tuesday - Back home!

Morgan had a good day today. She is feeling tired and a bit nauseous but, overall good. She had a blood transfusion this afternoon and was finally released from the hospital at about 3:30pm this afternoon. She was extremely happy to arrive back at home.

Day 5 ( Monday )

Morgan had a quiet day again today. Much of the same. She is really looking forward to coming home tomorrow.

Monday 11 July 2016

Day 4 ( Sunday )

Morgan was in good spirits today. She is still batteling this cold but she ate well today.

Sunday 10 July 2016

Day 3 ( Saturday )

Morgan still was feeling sick today but, she was in better spirits. She is still eating well. She played on her computer today and watched movies.

Friday 8 July 2016

Day 2 ( Friday )

Morgan is still feeling quite sick today. She rested, watched some tv and slept quite a bit. She is also feeling a bit nauseous from the chemo but still managed to eat today. Hopefully she feels a bit better tomorrow.

Day 1 ( Thursday)

Morgan is still batteling this cold and is not feeling very well today. She has no fever though, so that is a good thing.

She started her chemo and has a bit of nausea but is doing okay so far.

Wednesday 6 July 2016

Wednesday

Morgan had come down with a bit of a cold today. This morning she went in for bloodwork and then early this afternoon we found out she needed a blood transfusion. She headed off to children's hospital and was back home by around 8:30 this evening. She is feeling quite tired and under the weather today.

Tomorrow morning we are back into Children's to start her 5 day chemo.

Tuesday

Good day today. Morgan took it easy for most of the day. She did some drawing and watched a few movies.

Tomorrow morning she will go into Delta Hospital to get bloodwork done in preparation for the 5 day chemo that starts Thursday morning.

Monday 4 July 2016

Monday

Morgan had a good day today. She got up early and went to Delta Hospital to get her blood drawn. We got word that her counts were okay so we headed into Vancouver. We went shopping downtown and then went out for lunch. She had a great day.

She was complaining of a headache today so we are keeping an eye on it as it may be a sign that her hemoglobin is dropping. She took it easy this evening.

Sunday

Morgan had another quiet day today. She was in good spirits and are well.

She will be going into Delta Hospital tomorrow morning to do bloodwork. We should find out late morning if she needs to go in for a blood transfusion.

Sunday 3 July 2016

Saturday

Another quiet day. Morgan was in good spirits and ate well. She did some drawing today and watched movies.

Saturday 2 July 2016

Friday

Morgan had a quiet day today. She watched movies and relaxed for most of the day. She ate well and was in good spirits.

Friday 1 July 2016

Thursday

Morgan had a busy day today. We headed to Children's first thing in the morning to get bloodwork done. After that, we went to VGH to meet with the surgeon who will be performing Morgan's surgery.

We were told that they will be removing her entire collar bone and possibly her top rib as well as a bit of her sternum. Hopefully that will remove all of the cancer cells. They will then test the bone removed and if there is any live cancer cells they feel they have missed, she will then need radiation. The surgeon is quite confident that he can remove it all to try to avoid having the radiation as that can cause long term effects.

We then went back to Children's to meet with Morgan's oncologist. All went well and her blood counts are bottoming out as expected. We will need to get additional blood work on Monday to see if she will need a blood transfusion.