Morgan has been feeling great this past week. She tires quickly and needs to rest often, but we will take it. Life has gotten back to somewhat normal. It has been such a blessing to have Morgan home for Christmas as this was an unknown if it would even be possible a month or two ago.
We have enjoyed time with friends and family over the past week. We have gone out on little adventures and gotten back into a normal family routine.
Christmas Eve and Christmas day were wonderful. We spent time with family, spoiled the kids and gained a new appreciation for our quality time together. We feel so unbelievably blessed.
This next week will be more of the same. We will be soaking up the family time while we can. Going places and spending time with friends and family.
Morgan will be starting her grade 8 year officially full time at the highschool on January 3. This week, we plan on making a few trips over to the highschool to get her acquainted with where her classes are etc.
The first few weeks of January will be quite hectic as I mentioned, Morgan will be starting highschool full time. In addition to that, she will be going for numerous tests which include CT scan, MRI, heart test and finally a PET scan. We will also be going to a follow up appointment with her plastic surgeon to see how her new shoulder muscles are doing. Then finally, an appointment with her oncologist where we will get the results of her scans and heart test.
If her scans are NED (no evidence of disease/ cancer free!), we will then discuss what Morgan's future will look like. We will discuss what precautions we will need to take moving forward. What to watch out for in terms of relapse of Ewing Sarcoma as well as any other cancers that could occur because of the chemotherapy treatment she received. We will also discuss if she has any remaining chance of fertility in the future. Lastly, we will be looking at booking her surgery to remove her port which will hopefully be in the spring.
Once again I would just like to thank you all emensly for all of your continued support over this past year. It has lifted all of our spirits and has helped us get through. I hope you all had a wonderful Christmas and were able to spend time with loved ones.
**Slide show update- Thank you all so much for the pictures you have contributed! It has been so moving to see the love and support from you all. We have over 100 pictures and counting. We will be putting together the slideshow in the next few weeks to give to Morgan. I know she is going to love it. We will be keeping the slideshow a private video for just Morgan. It will make it more personal for her and also out of respect for everyone's personal images not being made public. I will be sure to post a picture or two of her watching it and maybe even a video of when she first sees it. Thank you all again so much! ❤️
So incredibly happy to see this post today. What an strong family you guys are to have handled all of this with such grace under pressure. She is a brave and incredible little lady. :). Love you guys!
ReplyDeletewishing all your families the very very best in 2017 .What a strong family you are with a very determined and brave little girl
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