Saturday

Morgan had a quiet day today. She is still feeling uncomfortable and in quite a bit of pain, but she is doing well. She spent the day watching tv and relaxing. Each day she feels a little bit better.

Friday

Morgan was feeling much better today and she was looking forward to coming home.

After meeting with the doctors and going over recovery at home, she left the hospital just before lunchtime. She then stopped in at Children's to drop off some paperwork and ended up meeting with her oncologist while she was there.

The doctor was very pleased with how well everything went and they discussed when Morgan should start her chemo again. We thought she would have a few weeks off to recover after the surgery but it turns out, she may be starting her chemo again this Thursday.

Even though the tumor was removed and she has tested clean in that area for cancer, she will still need to complete her chemotherapy regimen. The reason for that is ewings sarcoma is one of the most aggressive forms of childhood cancer. There is still the potential that microscopic undetectable bits of cancer are still floating around in her body. Studies have shown that surgery alone would not eradicate the cancer completely. It would just return either in the same spot or somewhere else in her body and most likely metastisize. The chemotherapy will further blast her body to kill off any and all bits of cancer left in her body and therefore, hopefully prevent it from spreading at this point and hopefully prevent it from ever returning in the future.

Thursday

Good day today. Morgan is up and moving around a lot more today. She is still in pain and that will of course, take time, but she is feeling much better.

They removed her drainage tubes from her back this morning. It was quite a painful procedure and she is happy it is over and done with. She has been taken off of iv fluids and was told that she will be able to come home tomorrow. We were so pleased to hear that.

This afternoon we got the most amazing news. The results of the pathology from the bones and tumor removed. The tumor removed was completely dead already! Which in turn means that there is no live cancer remaining in her at this point. This means that she will not need radiation!

We are so relieved and overjoyed as having radiation would mean further risks of cancer and illness in the future.  The surgeon said that the tissue surrounding the tumor was cancer free as well. This is all great news and we are so happy.

Now Morgan will take the time she needs to heal while being monitored by her oncology team. Then, when they feel she is strong enough, they will continue with the chemotherapy regimen. If all goes well, Morgan could be done her treatment as early as December. Today was a good day for us all.

Wednesday

Morgan's day today was a little bit brighter thankfully. She managed to take a few laps around the ward and was able to sit up in a chair for a while today. She is still batteling with the pain but every day it seems to be getting a little bit easier.

We are hopeful that she may be able to come home either this weekend or early next week. She has definitely made some great progress this week and her spirits although still fairly low, are improving daily.

Tuesday

Another challenging day. Morgan is tired of being in pain. She is struggling with staying positive but, looking forward to feeling better and going home.

She was able to get up today and take a few steps around her hospital room. She then sat in a chair for half an hour. Every day she feels a tiny bit better.

Monday

Another tough day. The pain came in waves today as did Morgan's mood. This has definitely been the toughest and most raw part of cancer so far. It is so hard to watch a child go through this. It is just not fair.

Morgan managed to stand up today and walk over to the window and sit down to enjoy the view. It was short lived before the pain took over and she was back in bed.

She had a visit from her oncology doctor and her personal nurse from children's hospital today. It was nice to see a familiar face at VGH. They were pleased with Morgan's progress and hopefull she will start feeling better soon. Hopfully Morgan will get the rest she needs and continue to feel a tiny bit better each day.

Sunday

Morgan had a very difficult day today. She was in a tremendous amount of pain all day and couldn't get comfortable at all. Pain medications just were not cutting it at all. She was pretty miserable.

The physiotherapist did manage to get her to stand up, which is great progress for her.

Hopefully tomorrow We can get the pain under control. It is really hard to watch her in so much pain.